Sacramento Down Syndrome Resources

SPOTLIGHT ON LOCAL RESOURCES


UC Davis Children's Hospital Pediatric Heart Center

Doctor Gary Raff at the UC Davis Children’s Hospital Pediatric Heart Center believes that "families with infants with complex congenital heart defects are under a lot of stress and pressure. It's better for infants and for families to have friends and loved ones close at hand during such a challenging time in their lives."

That's why the Pediatric Heart Center offers an integrated, interdisciplinary team of experts including pediatric cardiologists, pediatric nurses and specialists who are available to provide a comprehensive range of diagnostic, therapeutic and surgical procedures for infants, children and adolescents with congenital as well as acquired heart defects. They provide compassionate care throughout a child’s stay and ongoing support during recovery and rehabilitation.


Music To Grow On is Now Offering Both Private and Group Sessions for All Ages

Music Therapy is the specialized use of music by a credentialed professional in order to achieve measurable, non-musical outcomes in communication, cognition and learning, psychosocial adjustments, motor and sensory processing. Board Certified Music Therapists use musical experiences tailored to each individual’s needs including singing, music and movement, instrument playing, and music listening to assist children in reaching their fullest potential.

Music To Grow On provides both group and individual music therapy to individuals of all ages. To visit their website click on the logo above. If you are interested in forming or joining a group, beginning individual therapy sessions, or would like more information, please contact Bessie Barth at (916) 383-6100 or bessie@musictogrowon.net.

DSIA Resources, Research & Web Links

DSIA Resources

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DSIA's New and Expectant Parent Guide Now Available Online!

This comprehensive guide provides practical information and resources for parents, grandparents, therapists, educators and health care providers. Please click on the any of the links below to access the individual sections of the DSIA New and Expectant Parent Guide (PDF Format, Adobe Acrobat Reader required).

Hard copies of the Guide are available by contacting info@downsyndromeinfo.org or 916-658-1686.

Please help the DSIA continue to provide Down Comforter packages for free to new and expectant parents! Click here to donate and sponsor a family.

Down Syndrome Materials in Spanish

Recursos para padres nuevos y futuros (español)

Whispers of Hope now available online!

Click here to download a copy of the Down Syndrome Information Alliance book Whispers of Hope, featuring photos and inspirational stories from our families (PDF).

 

Learn about life with Down syndrome.

Click here to view the Dreams in Reality film, which features local adults with Down syndrome who are more alike than different!

National Organizations

National Down Syndrome Congress
 

National Down Syndrome Society

 

Research

The UC Davis Neurocognitive Development Lab along with the M.I.N.D. Institute is recruiting infants between the ages of 10 and 24 months with Down syndrome to participate in an NIH-funded study to understand early visual and cognitive processing in infants with developmental delays. Click here for more information click one of the links below:

http://mindbrain.ucdavis.edu/people/srivera/Rivera/
download the flyer (Microsoft Word)
 

Center for Research & Treatment of Down Syndrome
 

Stem Cell offers hope for fixing heart damage
 

Center for Research and Treatment of Down Syndrome in Stanford, CA
 

Down syndrome gene identified
 

Adopt-a-mouse for Down Syndrome Research

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